There's so much information available on the Internet about T1DM that it's almost overwhelming. In fact, it is overwhelming! That's why I've checked out all the resources for you and collected the best ones in this appendix. You can count on every Web site on this list to be authoritative, accurate, and free of bias (mostly). (Some aren't worth your time, and I've left them off this list.)
The Web sites in this list are divided into general sites, government sites, company sites (here's where you find a bit of bias but also some good information), sites offering great recipes for people with diabetes, and sites for the visually impaired.
If you don't have Internet access, I have to say that you're missing out on the greatest collection of information ever assembled in one place — your home. Visit your local library and get on the Internet there to check out all the fabulous resources in this appendix. (All I can say is that without the Internet, this book could never have been written. And if this book hadn't been written, what would I have done with all my free time for the past six months?)
My Web Site
My Web site, www.drrubin.com, is a good place to start because it has links to all the sites listed here. You don't have to copy Web addresses; just click on the link and go.
You may want to stop at my Web site look around for a bit because it contains a lot of content in addition to links. For example, I've posted many articles about diabetes as well as podcasts, recorded discussions of many issues in diabetes and other medical problems that you can download to your computer or MP3 player to listen to later.
You can find out about everything from antibodies to zinc preparations at the sites listed in this section. They offer in-depth discussions of all aspects of diabetes as well as assistance in finding specialists.
1 American Association of Diabetes Educators (AADE): This organization for all diabetes educators in the United States maintains a Web site with information about diabetes education plus a way to find a diabetes educator for yourself or your child. Just click "Find an Educator" on the home page. www.diabeteseducator.org
1 American Diabetes Association: The American Diabetes Association is, for better or for worse, the major player in diabetes in the United States. It conducts numerous programs for professionals and the public, and they're generally very good. The information about diabetes that this site provides is all-encompassing. In addition, the association publishes numerous books and pamphlets covering everything you want or need to know. You can order all publications off the site. www.diabetes.org
1 Canadian Diabetes Association: This association's Web site has a lot of information that (obviously) pertains to the special needs of Canadians with diabetes. However, much of the information is general and of use to everyone. A major bonus on this site is that the information is in French as well as English; also, several of its valuable publications are available in other languages. www.diabetes.ca
1 Children with Diabetes: This site is the creation of a father of a diabetic child and is an enormous database of information for the parents of children with diabetes. www.childrenwithdiabetes.com
1 The Diabetes Exercise and Sports Association: The association's Web site is a place where you can find out about many different kinds of exercise, how much you (or your child) can and should do, and whether there are any limitations because of diabetes. You can also find others who share your interests. www.diabetes-exercise.org/about.asp
1 The Diabetes Monitor: The Diabetes Monitor is the creation of diabetes specialist Dr. William Quick. On this Web site, he discusses every aspect of diabetes, including the latest discoveries. www.diabetes monitor.com
1 The International Diabetes Federation: This organization, representing more than 100 countries, meets every three years and supports many studies aimed at diabetes prevention. At this site, you can locate knowledgeable diabetes experts around the world and discover information about diabetes prevention. The federation recently launched a $10 million program to improve diabetes care. www.idf.org
il Joslin Diabetes Center: The Joslin Diabetes Center is one of the world's leading pioneers in diabetes care, and the information on this site reflects that fact. The site also tells you how you can join Joslin, do research, or go to diabetes camp. www.joslin.org
i Juvenile Diabetes Research Foundation: The foundation prides itself on its contribution to research in diabetes, and this site reflects that. You can find what you want to know about the latest government programs that emphasize finding a cure for diabetes. The site also tells you how to get into an ongoing or beginning study (or get your child into one). www.jdf.org
I New York Online Access to Health: New York Online Access to Health, or NOAH, is a partnership of New York institutions. The organization's Web site provides extensive diabetes information in both English and Spanish. On the home page, search the term "type 1 diabetes." http:// www.noah-health.org
I Online Diabetes Resources by Rick Mendosa: Rick Mendosa, a medical writer who has type 2 diabetes, has cataloged just about everything there is on the Web concerning diabetes. This is a huge undertaking, and he's managed to pull it off beautifully. He's also written some excellent articles on various topics related to diabetes. The site is well organized and constantly updated. You won't miss much in diabetes if you visit this Web site on a regular basis. www.mendosa.com/diabetes.htm
The Web sites listed in this section provide lots of authoritative information in their many online publications about diabetes. They also tell you about the latest government programs working to eradicate the disease.
l Centers for Disease Control: If you want to know all the latest statistics about every aspect of diabetes, go to this site. www.cdc.gov/doc.do/ id/0900f3ec802723eb l Healthfinder: A service of the U.S. Department of Health and Human Services, Healthfinder has information about many important diseases and has a large section about diabetes. Simply enter "type 1 diabetes" into the search box on the home page. www.healthfinder.gov
l MedFetch: MedFetch is a nongovernment Web site that allows you to search the national library. It's an excellent site for creating repeated searches over time on a topic like diabetes. The information arrives by e-mail, and the results are delivered in one of six languages: English, Spanish, French, Italian, German, or Portuguese. www.medfetch.com
1 National Diabetes Education Initiative: With the National Diabetes Education Initiative, the federal government is determined to teach physicians about the importance of meeting the standards of diabetes care and how to go about doing this. The site for the initiative contains case studies, a slide library, and podcasts that you can listen to. As someone with T1DM or the parent of a child with T1DM, you can learn a lot by looking at its programs; they aren't too difficult for the educated non-physician to understand. www.ndei.org/website
1 National Diabetes Education Program: The federal government sponsors the National Diabetes Education Program to improve treatments and outcomes for people with diabetes, to promote early diagnosis, and to prevent the onset of diabetes. It's a vast undertaking. The Web site for the program contains access to all kinds of free publications. (The site is also available in Spanish.) ndep.nih.gov
1 National Diabetes Information Clearinghouse: The Internet clearinghouse for information from the Institute of Diabetes and Digestive and Kidney Disease is loaded with great publications about diabetes.
1 PubMed Search Service of the National Library of Medicine: This is where you go to use the National Library of Medicine. The site is easy to use and gives you free access to a large number of the latest scientific papers on any medical topic of interest. Simply search PubMed for "type 1 diabetes" on the home page. www.ncbi.nlm.nih.gov/PubMed
The U.S. Government also provides numerous links to diabetes information in other languages at www.cdc.gov/diabetes/ndep/lang.htm.
The following sections help you find companies that make the products needed to control your child's diabetes (or your own). If you have questions about the proper use of a drug or a device, you can usually find answers at these Web sites.
Companies are very limited (by the FDA) with respect to the uses of their products, and often doctors use drugs in ways that have proven successful but haven't yet received FDA approval. So you may not find the answers you need online, in which case you should talk to your child's doctor.
The following companies make the meters used by the majority of people with diabetes. You can expect that these companies will still be around when your child starts having problems with his meter after a year or two of use.
A company with a very large share of the market for lancing devices is Owen Mumford, which you can find at www.owenmumford.com. You can get the SoftClix lancet at the Roche site (www.roche.com) or at pharmacies and online diabetes suppliers. The BD lancet is also generally available.
These four companies dominate the insulin market in the United States:
i Sanofi-Aventis: www.sanofi-aventis.us/live/us/en
The major manufacturer of insulin syringes is Becton, Dickinson and Company (also known as BD), www.bddiabetes.com.
Jet injection devices provide relatively painless insulin injection because they don't use needles. A number of companies are leading in this market, including the following:
Six companies dominate the market for insulin pump devices. The pumps they make are found at the following sites:
i CozMore Insulin Technology System: www.cozmore.com i DANA Diabecare II Pump: www.sooil.com/NEW/eng/main.htm i MiniMed Paradigm REAL-time Insulin Pump: www.minimed.com i OmniPod Insulin Management System: www.myomnipod.com
You can find a number of excellent recipes on the Web, but approach them with caution. Whereas you can generally count on getting accurate nutritional content information for recipes in cookbooks, when you find a recipe on the Web, you need to evaluate its source to be sure that the listed nutritional content is accurate.
You can trust the sites that I list here. These are the best of the currently available Web sites that provide recipes appropriate for a person with diabetes. Things change so frequently on the Web that it's difficult to keep up-to-date, so check the sites often.
1 American Diabetes Association: The nutrition section of the American Diabetes Association Web site begins at www.diabetes.org/ nutrition-and-recipes/nutrition/overview.jsp. Here you find discussions of nutrition as well as lots of diabetes-friendly recipes.
1 Ask NOAH About Diabetes: NOAH supplies links to many important articles about diabetic nutrition as well as diabetes-friendly recipes at
1 Children with Diabetes: The Children with Diabetes site includes a large amount of information on meal planning, sugar substitutes, and the food guide pyramid as well as many recipes (click "Readers' Favorite Recipes").
Find it all at www.childrenwithdiabetes.com/d_08_000.htm.
il Diabetic Gourmet Magazine: The magazine maintains an archive of its recipes in all categories, from side dishes to regional and ethnic cuisine to sauces and condiments; visit diabeticgourmet.com/recipes.
I Diabetic-Recipes.com: This site has more than 800 recipes for people with diabetes at www.diabetic-recipes.com.
I Joslin Diabetes Center: The Joslin Diabetes Center points out that "there is no such thing as a diabetic diet." That's one of many statements about nutrition you can find, along with recipes, at www.joslin.org/ managing_your_diabetes_7 09.asp.
i The Vegetarian Resource Group: This organization maintains a site filled with information for vegetarians who have developed diabetes; along with suggested menus, you can find recipes at www.vrg.org/journal/ vj2 0 03issue2/vj2 003issue2diabetes.htm.
I 3 Fat Chicks on a Diet: This site has complete calorie counts for most fast-food restaurants at www.3fatchicks.com. The site doesn't contain recipes, but the popularity of fast food makes this site a must-have resource.
Diabetes has a major impact on vision, the kidneys, and the nervous system, not to mention the heart, when the disease isn't controlled (see Chapter 5). Here are the best sites on the Web to explore those problems further.
You can find information on every issue relating to visual impairment at the following sites:
i American Foundation for the Blind: The foundation has resources, information, reports, recorded books, and limitless other facts and wisdom about dealing with visual impairment. www.afb.org
i Blindness Resource Center: This site points you in the right direction for information on every aspect of blindness. It's a fantastic guide to other sites about visual impairment. www.nyise.org/text/ blindness.htm i National Federation of the Blind: This national organization is another major source of information about every aspect of blindness. www.nfb. org/nfb/Default.asp
The best site for everything you want or need to know about kidney failure — whether it's associated with T1DM or not — is the National Kidney Foundation's site at www.kidney.org. Head to the "A to Z Health Guide" under "Kidney Disease" to get started.
The government offers two extensive sites for information on diabetic neuropathy:
1 National Diabetes Information Clearinghouse: diabetes.niddk. nih.gov/dm/pubs/neuropathies
1 National Institute of Neurological Disorders and Stroke: www.ninds. nih.gov/disorders/diabetic/diabetic.htm
The American Heart Association's Web site is loaded with information on all aspects of heart disease, including diabetic heart disease, at www.american heart.org. On the home page, select "Diseases & Conditions," and then click "Diabetes" from the drop-down menu.
Was this article helpful?
All you need is a proper diet of fresh fruits and vegetables and get plenty of exercise and you'll be fine. Ever heard those words from your doctor? If that's all heshe recommends then you're missing out an important ingredient for health that he's not telling you. Fact is that you can adhere to the strictest diet, watch everything you eat and get the exercise of amarathon runner and still come down with diabetic complications. Diet, exercise and standard drug treatments simply aren't enough to help keep your diabetes under control.